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A.Vogel Talks Fibromyalgia

Fibromyalgia is a health condition which affects up to 5% of people

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  • Susan's photo avatar
    Susan — 18.09.2017 22:44
    Hi I had a spinal fusion done in 2005,but it didn't take,but over the last 5 years been having really bad pains in my left shoulder,a lot of the times it is burning like mad,and even steroid injections didn't work ,they tried to tell me that it is through wear and tear in my neck,but I also suffer with IBS but lately have really bad muscle cramps in my tummy,have muscle spasms in my legs,feet and lower back,and wake up in the night screaming with pain,it is horrendous,then I started 5 years ago getting lumps appearing under my skin,they were painful but didn't go red or bruised,even suffer with terrible heartburn all the time,and no pills shift it,very often headaches,and even though I take a lot of tablets,I find it difficult to sleep at night,am awake every couple of hours,but yet if I get up in a morning and do a bit of housework or go out for a couple of hours,I come home put my feet up to watch a film,and find myself fast asleep,I am so fed up am really feeling down in the dumps all the time,my doctor runs blood tests and it always comes back with C Reactive protein levels are high,she said that means there is an infection in my body,but they don't know where it is,even when I had a spell in hospital,they said the same thing to me,so could I be suffering from Fibromyalgia

    Reply

    • Earle's photo avatar
      Earle — 19.09.2017 11:22
      Hello Susan Diagnosing fibromyalgia is very difficult as it share many of its symptoms with other conditions such as polymyalgia rheumatica, rheumatoid arthritis, Lymes disease, chronic fatigue and menopause. Doctors like to start by testing for these first and so it can take a long time to eliminate them all. An added complication is that sometimes people with fibromyalgia are going through the menopause or have rheumatoid arthritis etc at the same time, so a positive test for one of these can sometimes lead the doctor to think 'case solved'. There is also no test or scan that identifies Fibromyalgia so some doctors doubt it even exists, so my best advice is first, see your doctor and ask for a referral to a rheumatologist (they're much better informed) and, if you're still not happy, just treat it yourself and don't bother waiting any longer for a diagnosis. Guidance can be found on the page you were reading. However, I think the first things you should focus on are your poor sleep and shoulder pain. For the sleep, our Dormeasan drops both deepen and lengthen sleep, meaning you're less likely to fall asleep in the day and your mood, energy and pain tolerance will improve. For the shoulder, I'd recommend seeing a physiotherapist or chiropractor who will be able to make adjustments and ease the tissues limiting its function and causing you pain. 3 sessions is often enough to see improvement.

      Reply

    • Susan's photo avatar
      Susan — 18.09.2017 22:37
      Hi I have had my GP do blood tests for RA,but they have come back as negative,however I am seeing a Rheumatoid specialist next month,to see if they can get to the bottom of it,I have had tests also for going through the change,but that has come back ok too,my gp sent me to the dermatalogist over the lumps,they did a biopsy but couldn't find the cause,so now am awaiting to se the specialist next month because my GP says they can see that my SRI's are up and down every time I get a blood test,it's just the not knowing the cause,plus the constant sweats 24/7 which I have been assured is nothing to do with my hormonal changes at all,so have no idea about those either,as I can be in a shop trying clothes on,and the sweat just rolls of me,I am continually fanning myself,even just sat in the pub with friends,I get really embarrassed by it all,so can only hope that this specialist can give me some answers ,if not I might have to ask them about this Fibromyalgia and see what they say,but would definitely like to try your remedy for sleeping,as I am awake every 2 hours and also get very warm in bed even in the winter months I tend to sweat in bed all the time

      Reply

  • Angela's photo avatar
    Angela — 15.09.2017 10:34
    I have all the symptoms but just keep getting told its wear and tear to my joints and nothing to worry about ,so I am getting really down and don't no what to do now I work full time and it interferes with work

    Reply

    • Earle's photo avatar
      Earle — 15.09.2017 15:29
      Hello Angela Long answer I'm afraid as your question has two components - you doubt the diagnosis (and the 'age' excuse your doctor has offered is simply lazy) and you do suspect you have FM: Diagnosing fibromyalgia is very difficult as it share many of its symptoms with other conditions such as polymyalgia rheumatica, rheumatoid arthritis, Lymes disease, chronic fatigue and menopause. Doctors like to start by testing for these first and so it can take a long time to eliminate them all. An added complication is that sometimes people with fibromyalgia are going through the menopause or have rheumatoid arthritis etc at the same time, so a positive test for one of these can sometimes lead the doctor to think 'case solved'. There is also no test or scan that identifies Fibromyalgia so some doctors doubt it even exists, so my best advice is first, see your doctor and ask for a referral to a rheumatologist (they're much better informed) and, if you're still not happy, just treat it yourself and don't bother waiting any longer for a diagnosis. Guidance can be found on the page you were reading. Let's assume you do have fibromyalgia - Managing fibromyalgia is hard work, involved and rarely produces a miracle cure but there are a variety of small things to do that together can help a lot. No-one really knows of a magic bullet for fibromyalgia, whatever you take or do but we would very much hope that engaging in measures such as low impact exercise, addressing sleep quality and dealing with the IBS that is common to fibromyalgia would at least minimise its impact. Getting to the root cause is difficult, as it isn't really agreed. It is believed that there is reduced blood supply to the part of the brain that processes pain and perhaps to the affected muscles too, so a herb such as Ginkgo Biloba could hold some promise. Remedies such as Dormeasan could help mood, pain threshold and energy levels by improving the quality of sleep and water-based exercise, Tai Chi or Yoga can aid circulation and maintain flexibility. A recent trial comparing swimming and paracetamol for lower back pain found the swimming outperform the medicine. There's no way that the drug would help mood, energy levels, sleep quality, joint mobility, self satisfaction and overall health at the same time as easing pain, so please consider moving more when you're able to, as the medicines will never cure the condition and encourage people to become inactive. There is no drug cure, as you are probably aware and we know that those who retreat to inactivity see their symptoms worsen, so the best chances of recovery seem to be in those who find the determination to take action and keep active. Often the biggest barrier to doing so is that first 10 minutes, ie: getting changed and out the door, because depression can make it hard to find the motivation and pain makes the first few steps uncomfortable. You'll need to find a balance between the excessive exertion levels involved in moving heavy tables and doing nothing through fear of exhaustion and walking, yoga, Pliates or swimming tends to hit the spot about right for most, although I appreciate you're not in a good place even to walk at the moment. The worst thing you can do is to simply stop as joints and muscles only stiffen up further. I'd strongly advise arranging to see a Cognitive Behavioural Therapist to learn some pain management techniques. You can get 5x30 minute sessions for free on the NHS but that 2.5hrs total doesn't match the amount found in clinical trials to be of benefit, so contact a CBT practitioner for better results. As to what the future holds, no-one knows of a cure but it's most likely true that the answer doesn't lie in a single pill or measure. CBT, addressing sleep issues, the right amount of exercise and a bit of bloody-mindedness are the most basic requirements and something most people who contact me with fibromyalgia haven't even begun to try. Trials have shown significant benefits for each of these (well, perhaps not the bloody-mindedness) separately in Fibromyalgia, so there's a fair chance a comprehensive approach will achieve much more.

      Reply

  • Angela's photo avatar
    Angela — 15.09.2017 10:33
    I have all the symptoms but just keep getting told its wear and tear to my joints and nothing to worry about ,so I am getting really down and don't no what to do now I work full time and it interferes with work

    Reply

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